Our son, Stephen, was diagnosed with Morquio B (MPS IVB) 9 years ago. It all started when…
His condition is so rare that when he was diagnosed information on outcomes was practically nonexistent. As parents of a child with a rare disease we were devastated, but thankfully, we found hope at BC Children's Hospital. Dr. Cooper has performed several leg straightening surgeries on Stephen. He always takes the time to explain the procedures and expected results to our family and he listens to any questions that we may have. He has always made Stephen feel at ease going in to every surgery.
My son, Matteo was born with Bilateral Fibula Hemimelia
We knew prior to his birth that his lower legs were missing the fibulas, but not until he was born did we know what that would mean to Matteo and to our family. After much thought and consideration, we decided to have both of Matteo’s feet amputated when he was one year old. His feet were deformed, and he had no ankle support. He never would have been able to walk or run with any efficiency or ease. Six months after the amputation, Matteo started walking with prosthetics. He has never looked back.
Matteo has always brought us joy, from the moment I found out I was pregnant until the present. There has been fear of the unknown, grief for lost dreams, and very challenging times, but not once has he felt sorry for himself. He lives a full and happy life and has a very promising future ahead. Matteo has a steady confidence that will serve him well in life.
We first meet Dr Cooper 4 years ago when he joined the Orthopaedic Department at BC Children’s Hospital. We see him regularly at check-up appointments and he has performed one complicated surgery on Matteo in February of 2017.